Saturday, April 20, 2013

Fighting Food

Beautiful Bri. Mommy has not written an update in a very long time. We've had a lot going on lately so I'm a little behind.

Your fight with food seemed to be on the right track. You were on zinc drops for two weeks, per your GI specialist, and they really seemed to help. We got your stools down to an average of 1-3 a day. That is within the normal range for children or adults. Mommy and daddy are very relieved about this. Your diaper rash is almost completely cleared up as well. That is huge progress for you my dear! With so many steps in the right direction, everyone felt like it was time for you to start some baby food again. We were very hopeful.

We started with peas because this was a baby food that we had tried before so we already knew what your previous reaction to peas had been. You seemed to enjoy eating them! You like being able to eat off of a spoon and participate in meal time with mommy and daddy even if you were just eating simple peas. You never got a rash on your face or in your diaper area so we were very happy about that. You did have some pretty bad tummy pain and gas that kept you up almost all night the first night after we started with peas. That was worrisome, but we decided to keep giving you baby food. The only way to really test this food stuff is to just keep going with it and see how you react. After 3 days with peas, you didn't seem to have anymore tummy pain, but you did have diarrhea. As long as the pain was gone, we decided that we could live with the diarrhea, and decided to try some new foods. We tried sweet potatoes, bananas and peaches. Each time we would wait 3 days when we started a new food to make sure you didn't have a reaction to it before we would start anything else. We were very careful. We gave you baby food in the morning and in the evening for 12 days. On day 9, though, the bad diapers arrived. One bad diaper didn't worry me too much, but we saw them for 3 days in a row. On the third day we decided to stop giving you baby food. The only real way to describe these extremely smelly diapers is black, liquid tar. Black colored stool is a pretty good indication of blood in the upper GI tract. You have a doctor appointment on Monday so we will probably have to test your stool, but I'm pretty sure that test will come back positive for blood in your stool.



I called your GI specialist to update him and get some guidance on how to proceed. He told us to discontinue giving you any baby food and we will discuss the next step on Monday. I'm very curious to see what the GI specialist is going to have to say at your appointment. I have no idea what the next step could be. It is mommy's worst nightmare that your body won't be able to handle food. It is literally like your body tries to fight food like it is some kind of foreign object that it needs to attack and get rid of. I hope you aren't on a liquid diet forever! I will try to update everyone next week about what we hear from the doctor.

So you are back to just having your yucky Nutramigen formula my baby girl. I'm sorry. It breaks my heart to see you cry when we start eating because you are beginning to realize that we are doing things that you can't do. You are so smart. At least you seem to be developing normally even with your food issues. You crawl and play and bring a lot of joy to our lives. We know this battle with food isn't even close to being over, but we will continue to fight baby! Keep being strong and patient with us darling. Don't you ever forget how much we love you, always and forever.

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